An Angus man has travelled to the Houses of Parliament to raise awareness of the disease that is killing him.
Keith Swankie from Arbroath joined sufferers of Progressive Supranuclear Palsy known as PSP at Westminster at the launch of “Ed’s Lace”.
He is hoping people will back the Ed’s Lace campaign by wearing a turquoise lace with one end cut.
The idea is to show how it frays and gradually deteriorates in the same way as those affected by PSP.
Keith’s wife Sheelagh spoke at the launch and described the impact of a delay in diagnosis for her husband on their family.
“We went down a very long and hard road until Keith finally got a diagnosis of PSP,” she said.
“We hope that by raising much-needed awareness, in the future others in our unfortunate position will get the right care at the right time.”
The reception was jointly hosted by Kate Green MP and Stuart Andrew MP who are both supporters of the charity.
Ed’s Lace is the Progressive Supranuclear Palsy Association’s (PSPA) campaign for 2015 and the focus of the charity’s Awareness Week (April 19-26).
Ms Green said: “Raising awareness is important so that people can get an early diagnosis and quick access to the care and the support they need.”